Monthly Archives: July 2012

Participate in a TBI Study!!

Study information


Help those trying to help you or the people you care about!!



The Model Systems Knowledge Translation Center (MSKTC), funded by the National Institute on Disability and Rehabilitation Research (NIDRR), is a project carried out by the American Institutes for Research in collaboration with George Mason University (GMU) and WETA/BrainLine. The goal of the MSKTC is to improve the quality, clarity, and relevance of information available to individuals with spinal cord injury (SCI), traumatic brain injury (TBI), or burn injury and other stakeholders.


For this study, the MSKTC seeks to better understand the health information needs of caregivers of individuals with spinal cord injury, traumatic brain injury, and/or burn injury.


What is this research activity about and what will you ask me to do?


We are developing consumer materials for caregivers of individuals with spinal cord injury, traumatic brain injury, and/or burn injury. In order to tailor these materials for our target audiences, we seek to understand the health information needs of caregivers.


Participants will engage in a telephone interview, during which we will ask you to complete a questionnaire and ask some questions about your health information needs. This interview will take about 60 minutes via telephone, and you will be compensated $20 for your time.


Who can participate?


  • Participants should be individuals who are partners/caregivers for some who has had a traumatic brain injury, spinal cord injury, or severe burn injury in the past five years.
  • Participants must be over 18.

Do I have to participate in this research activity?


No.  It is your choice to participate or not. Also, you have the right to stop participating at any time, and you do not have to answer any questions that you don’t want to.  There are no penalties if you choose not to participate or stop participating. All information you provide will be confidential.


More information


If you have additional questions about this project, please call             (202) 403-5127       or email